Pearl of people with down Syndrome foundation – Tanzania

Pearl of people with down Syndrome foundation – Tanzania

Pearl of people with down Syndrome foundation – Tanzania

COUNTRY PROFILEINTRODUCTION

Pearl of People with Down Syndrome Foundation (PPDSF) was established on 24
February, 2017 as a Non-Governmental Organization with Reg No. 00NGO/0009063. (Prior to this time it existed from 2011 under the name Penny Aika Down Syndrome
Foundation). PPDSF is a representative organization of Down Syndrome people in Tanzania
and it is a member of Tanzania Disabled People’s Organization (Shivyawata), Africa Down
Syndrome Network (ADSN) and Down Syndrome International (DSi).

                
I. AREAS OF OPERATIONS THAT IS IN PLACE WHICH WE PHYSICALLY
REPRESENT AND HAVE ACTIVITIES IN OUR COUNTRY
Currently the Foundation has an office in Dar es salaam Region where some activities are
implemented such as meetings of Parents/Carer of people with Down Syndrome. This
enables them to discuss various issues for the well-being of their children and people with
Down Syndrome. Also the Foundation has a number of Parents/Carers and a contact person
in Arusha region. ___________________________________________________________________________
Email:pearlofpeopledownsyndrometza@gmail.com
Address: Plot No. 491 Block D Ally Sykes RoadUzimuka & Kasembe Street
Tel:+255 762 055673(also whatsapp) & +255 623 736202
P.O Box 33463 Dar es Salaam, Tanzania.
Facebook: pearlofpeoplewithdownsyndromefoundation
www.downsyndrometanzania.org & www.downsyndrometanzania.com
For any Donation; Grant etc, pls send to Account Nos:
Tanzania Shillings (TZs): 3007211392404. US DOLLARS: 3007211392393
Account Name: PEARL OF PEOPLE WITH DOWN SYNDROME FOUNDATION
BANK: EQUITY BANK (Mwenge Branch) DAR ES SALAAAM TANZANIA
II. NUMBER OF PERSONS WITH DOWN SYNDROME WE HAVE ON OUR DATA
BASE SO FAR
The Foundation has contacts parents & carers of about twenty five (25) children and adult
Down Syndrome in Dar es Salaam region and eight (8) in Arusha region in Northern
Tanzania.

                    
III. CHALLENGES WHICH DOWN SYNROME PEOPLE FACE WITH LIFE IN AFRICA
WITH THEIR FAMILIES
People with Down Syndrome are facing various challenges such as:
1. Health related challenges. Many people with Down Syndrome are frequently
attacked by health problems such as heart problems, Eye problems ( poor vision). 2. Economic challenges. Most of people with Down Syndrome and their families are
Poverty stricken due to the fact they spent much of their time to take care of their
children/people with Down Syndrome as there are no Institutional Care and
support system where people with Down Syndrome Can be helped. Again people
with Down Syndrome do not have an opportunity to be employed as they regarded
to have no qualifications although they can be good on manual work. This result to
the high dependency level of people with Down syndrome to their parents/care
givers to earn their lives. However this situation pose a challenge of what will happen
to them when if their parents/Care Givers dies.
3. Education challenges. Still children with Down Syndrome do not have an equal
access to education like other children who do not have disabilities. This is twofold.
Firstly this is due to the fact that many parents/care givers do not see the need of
enrolling children in schools as they are regarded to be incapable to learn. Secondly, the learning environment is not friendly due to the fact that that many schools do
not have user friendly infrastructure that would be able to accommodate children
with Down Syndrome. 4. Inclusive society. To this day children/people with Down syndrome are not well
included in many community activities as they are considered as incapable and
therefore have no significant contribution. Some families hide them indoors and
hence they are denied their right of inclusion with others. Their voice and needs are
not heard and they are therefore not included in any decision making process. In
African context some communities have a myth that People with Down Syndrome
born as a punishment to that family for any sin they committed or as a way of
sacrifices to get more wealth.
IV. OUR CHALLENGES AS A NATIONAL DOWN SYNDROME ORGANIZATION
As a National organization PPDSF is facing a couple of challenges which include
Resources to run organization activities. Currently the organization activities are financed by
organization members as we have not yet received any financial support from other
resource providers. Most of the works are done by volunteers. However without having
someone employed for the Foundation work pose a challenge as sometimes volunteers are
not available all the time. We need to have one full time Coordinator as a start point while a
Foundation is still in infancy stage. We expect at least to have three permanent staff
(Coordinator, Advocacy Officer and Finance cum Administrative Officer. We need to brand
ourselves to reach the whole country but moving strategically as we mobilize resource for
the work. We need to have focal person for each region who will help to coordinate
Foundation at lower levels
V. OUR FUTURE PLANS
According to our plans we need to do the following activities
1. Conduct Situational Analysis to have the data for People with Down Syndrome in
Tanzania
2. Conduct Early identification of children born with Down Syndrome at health facilities
for early intervention
3. Conduct awareness program about what is Down Syndrome at community level to
win community support through using of both electronic and print media as well as
community meetings.
4. Publish leaflets, phamphets and books in oedr to enhance awareness to general
public.
5. Advocate for the formulation of policies that are favourable to people with Down
syndrome
6. Develop three years’ PPDSF Strategic Plan that will guide our work . VI. HOW WE WOULD WANT GOVERNMENTS TO COME IN AND HELP
We have already engaged Government through signing of Memorandum of Understanding
with the Ministry of Health, Community Development, Gender, Elderly & Children
(MoHCDGEC) . We wish to work together to implement activities which are addressing
Health, Social & Community related issues to people with Down syndrome.
PPDSF is also in the process of signing a MoU with Ministry of Education, Science,
Technology and Vocational Training. The MoU is particularly aiming at finding a way on how
we can work together in an inclusive education at all levels to people with disabilities where
people with Down Syndrome form a part of it. We also wish to explore more opportunities
available in the education system in Vocational Training and Life Skills.
We would very much appreciate if individuals, groups of people, charities, both local,
regional and international support us us in anyway possible, in kind and in monetary form.
PPDSF is the Voice for the DIFFERENTLY ABLED!
Thank you,
CHAIRPERSON

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